Severe ME Awareness Day is a day to raise awareness of severe myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS). It is observed every year on August 8th.
The illness is considered a day for remembrance of those who suffer from and have died from severe myalgic encephalomyelitis, as well as a chance to educate the public about severe ME and advocate for better treatment.
People with severe ME are often bedbound/housebound and unable to carry out most of their daily activities.
Myalgic encephalomyelitis (ME), is a complex, long-term illness that affects many parts of the body.
Also known as chronic fatigue syndrome (CFS), the illness causes extreme fatigue that doesn’t improve with rest, along with a variety of other symptoms, such as muscle pain, cognitive problems, and sleep disturbances.
According to health experts, the exact cause of ME is unknown, but it is thought to be caused by a combination of factors, including a viral infection, an autoimmune response, and genetics.
So far there is no cure for ME, but there are treatments that can help to manage the symptoms.
The main symptoms of ME/CFS are:
Extreme fatigue accompanied by muscle pains, usually not improved by rest.
Cognitive problems, such as difficulty concentrating, forgetfulness, and problems with thinking and planning.
Sleep problems, such as difficulty falling asleep, staying asleep, or waking up feeling unrefreshed
Problems with the autonomic nervous system, such as dizziness, lightheadedness, and problems with blood pressure regulation
Sensitivity to light, noise, and smells
The diagnosis of ME/CFS can be difficult, as there is no single test that can confirm the diagnosis.
Treatment of ME includes;
People with ME/CFS need to pace themselves and avoid activities that make their symptoms worse.
There are a number of medications that can be used to treat the symptoms of ME/CFS, such as pain medication, antidepressants, and medications to improve sleep.
Cognitive behavioral therapy can help people with ME/CFS to manage their symptoms and improve their quality of life.
Exercise can be helpful for people with ME/CFS, but it is important to start slowly and gradually increase the amount of exercise as tolerated.