We all have that one thing we did not choose yet live every moment as a fulfilling call yet we stand with a voice. “In my life have never seen melanin so bright, you are the queen of the dance,” Sauti sol sang. “Kuna wenye wanapenda choco mi napenda light skin…” Otile brown sang. Yes! Such a vibe, underline the message that melanin is the base of these conversation. Albinism is absence or little or no melanin pigment.
Albinism is a rare group of genetic disorders that cause the skin, hair, or eyes to have little or no color. Albinism affects the production of melanin, the pigment that colors skin, hair and eyes being a long lifetime disorder.
People with albinism have a reduced amount of melanin, or no melanin at all. This can affect their coloring and their eyesight.
The 2 main types of albinism are:
- oculocutaneous albinism (OCA) – the most common type, affecting the skin, hair and eyes.
- ocular albinism (OA) – a rarer type that mainly affects the eyes.
Not to the get into the nitty-gritty of albinism and bore you with all the details; 13th June is International Awareness World albinism day running with the theme:
‘United in making our voices heard.’ With reason as stated with United Nations,
- because including voices of persons with albinism is essential to ensure equality #Inclusion4equality;
- to celebrate how groups of persons with albinism and individuals increase the visibility of persons with albinism in all domains of life;
Today across the globe, we are celebrating Albinism to as to amplify their voice and position in the space. Talented, skilled and educated they are and with the right inclusion. We make a community.
In the recent years we have heard of albino skin being sold out for trade with Tanzania and South Africa being in the lead especially with the high number of Person with Albinism in their states.
Today they match the streets as they gather to assure their fellows that they are part of a community and abled in all aspect of life, with the mission to
- Ensure security.
- To ensure that their voice is heard and amplified.
- To ensure they are not discriminated.
If we had control over our body cell and pigment, we would have therefore over our skin color. Let celebrate nature as we celebrate persons with disabilities.
World international Albinism awareness Day!